Main Page

Let's always support children

Support our suffering angels

Always donate for children

Support our suffering angels

Welcome to oxpins charity

Join us and donate to the children

Yaşama Dəstək (Living Support) was founded in 2017 by the philanthropists Abil Huseynquliyev and Elgül Huseynquliyeva. The reason for its establishment was Elgül's encounter with individuals suffering from three helpless and rare diseases. One of these diseases is Epidermolysis Bullosa (EB), a very rare and debilitating skin condition. It arises from consanguineous marriage. People affected by this disease live with constant wounds and pain. Although there is no complete cure, they have treatments to improve their quality of life. However, these treatments require significant financial resources. The disease causes significant disabilities. Hands become immobilized, and they have difficulty swallowing food. They can live comfortably with the use of special bandages and creams. However, due to the high cost of these bandages and creams, families are unable to provide this treatment to their children.

Our meetings
Our latest events and meetings are here
Be supportive
Support for angels suffering from Butterfly, Ichthyosis and Immunodeficiency!

MORE DETAILS

Help & donate us now

News and blogs panel

Negar

Meeting with parents

Our Dilara

Recently asked questions

FAQ panel

You can find answers to your questions here

FAQ

Where and how do these diseases arise?

These diseases are rare diseases. It mainly arises from consanguineous marriages. Unfortunately, there are no complete cures.

What are the symptoms of Epidermolysis Bullosa (Butterfly) disease?

Butterfly disease is caused by consanguineous marriage. The skin of people suffering from this disease causes spontaneous combustion. Hands are tied, food cannot pass through their throats.

What are the symptoms of ichthyosis?

Ichthyosis is caused by consanguineous marriage. Children born with this disease develop cracks and dryness in their skin. Because the skin is dry, a special cream must be used two to three times a day. As a result of its complications, the skin is stretched and the eyes are constantly open. The skin must be transplanted.

What is immunodeficiency disease? What are the symptoms?

Immunodeficiency disease is very serious. Immunity becomes zero. It arises from consanguineous marriage. These patients live only with "ivik" needle device. This injection should be given every month. One of the syndromes is Liubar. Over time, these patients lose their ability to walk, speak, and even chew.

What is the activity of Life Support PU?

"Yaşama Dəstək" PU was established in 2017 with the aim of supporting people suffering from desperate and rare diseases. With the support of Leyla Aliyeva, vice president of the Heydar Aliyev Foundation and helpful people, the foundation supports the treatment of patients.