Negar

As you know, the "Life Support" Center also supports those suffering from immunodeficiency disease. This disease is also hereditary. We have informed about the disease of butterfly and Ichthyosis. Now let's talk about babies suffering from immunodeficiency disease. This disease also has several syndromes. The difference between this disease and other diseases is that it is not related to the skin. The level of immunity in the blood becomes zero. They are given an injection every 21 days and thanks to that injection they stay alive. There are more severe syndromes of this disease. The most severe syndrome is Louis-Bar syndrome. Children born with this syndrome develop normally for the first 2-3 years. Later, complications in the bronchus-pulmonary and gastrointestinal system manifest themselves.

Nigar is now 15 years old and suffers from immunodeficiency disease. He lived a normal life until the age of eight. Later, severe complications of this disease became apparent. Currently, Nigar has difficulty speaking, his body is shaking, he has lost his ability to chew. He and his parents still have hope that Nigar will recover soon. Nigar thinks that he will still walk like before. Also, Nigar is a very intelligent and educated child. He loves history. On the days when Nigar comes to our center, only his favorite dishes are cooked.