Join us and start donating

General organization information

Elgül Zülfüqar Huseynquliyeva, daughter of Zülfüqar, was born in 1984 in the Tazekend village of Shamkir district. In 2003, she was admitted to the Azerbaijan Architecture and Construction University. Since those years, together with her life partner Abil Huseynquliyev, she has engaged in charitable activities.

Since 2017, Elgül Huseynquliyeva has been researching and providing support to patients suffering from the rare diseases of ichthyosis, epidermolysis bullosa, and immunodeficiency in Azerbaijan. Due to the rarity of these diseases, they have not been formally diagnosed by medical professionals. Nevertheless, Mrs. Elgül has been actively locating and supporting these patients for over 5 years, providing them with medical treatment and arranging surgeries.

Become a Volunteers

Help us for a happy and healthy future

Make a donation
Recently asked questions

FAQ panel

You can find answers to your questions here

Make a donation

Where and how do these diseases arise?

These diseases are rare diseases. It mainly arises from consanguineous marriages. Unfortunately, there are no complete cures.

What are the symptoms of Epidermolysis Bullosa (Butterfly) disease?

Butterfly disease is caused by consanguineous marriage. The skin of people suffering from this disease causes spontaneous combustion. Hands are tied, food cannot pass through their throats.

What are the symptoms of ichthyosis?

Ichthyosis is caused by consanguineous marriage. Children born with this disease develop cracks and dryness in their skin. Because the skin is dry, a special cream must be used two to three times a day. As a result of its complications, the skin is stretched and the eyes are constantly open. The skin must be transplanted.

What is immunodeficiency disease? What are the symptoms?

Immunodeficiency disease is very serious. Immunity becomes zero. It arises from consanguineous marriage. These patients live only with "ivik" needle device. This injection should be given every month. One of the syndromes is Liubar. Over time, these patients lose their ability to walk, speak, and even chew.

What is the activity of Life Support PU?

"Yaşama Dəstək"  PU was established in 2017 with the aim of supporting people suffering from desperate and rare diseases. With the support of Leyla Aliyeva, vice president of the Heydar Aliyev Foundation and helpful people, the foundation supports the treatment of patients.